Monday, April 25, 2011

Hotdog Soup

Sounds disgusting, huh?  I threw it together tonight and B & Jilly loved it, so I thought I'd share.  this would be much healthier with dried, soaked beans...but I was in a pinch for time.

1 can of black beans drained and rinsed
1 nitrate free buffalo hotdog sliced
1 carrot peeled and chopped
1 stalk of celery chopped
1 1/2 cups of sea salted water or beef broth if tolerated
ground fennel to taste
cumin to taste

Add all ingredients and bring to a boil.  Then simmer until vegetables are soft.

It's not gourmet, but when B and Jilly both like something, it's worth sharing. :)

Edited to replace sage with fennel and to say this really is a kid soup.  I didn't like it, but B & J loved it.  So, cook at your own risk!

Sunday, April 24, 2011


B is doing really great.  Sometimes we get that look from people I know means they wonder if there is anything wrong with B's health at all.  I wonder if they think I'm some kind of Munchausen mom.  Believe me, this is not the case.  I would LOVE to give B slice of cake and ice cream or just make him a pb&j on the fly.  It would be FANASTIC to not give him allergy and B12 injections.  It would be AWESOME if he didn't have to take  supplements.  The fact that we get these looks means all of the above is working.  Hooray!

We had an interesting time this month when B caught some kind of infection.  We suspect strep because of the PANDAS and the way he was acting.  The throat culture came back negative, but strep can target other parts of the body, so I'm not convinced it wasn't a PANDAS flair.  Any veteran PANDAS moms want to weigh in?  This really is all new to me.

B woke up screaming that the light was hurting his eyes.  Uh-Oh.  He had a fever and was lethargic.  I sent him back to his bed.  Periodically, he'd get up to use the rest room or get a drink.  When he washed his hands, he turned the water off, then on, then off, then on about 10 times.  Then I heard a squeak, no, more of a hiccup.  When I checked on him, I realized he was swallowing air.  Over and over again.  A new tic.  Throughout the day, his little tummy became so distended, he was crying.  "Mommy, is my tummy going to feel this way forever?" More squeaks.  Swallowing air.  He was throwing screaming tantrums.  Fixating on things.  At one point he screamed, "I'm going to throw up!" and ran to the bathroom where he let out the longest burp.  Poor kid had swallowed too much air.  The next day, he just cried and yelled, "I can't stop burping!"  He couldn't stop swallowing air.  His other tics all came back, too.  I was worried.  

We called his DAN.  With B's leaky gut, antibiotics are a scary thing.  Antibiotics create more yeast which leads to a leakier gut which leads to more food allergies.  However, a PANDAS flair damages the brain.  Basically, B creates too many antibodies to strep and they attack his brain.  So, the strep needs to be taken care of.  Our DAN recommended we take him to our GP and start B on an antibiotic.  We did just that.  His tics went away except for the swallowing tic.  It seems pretty comfortable.  Our DAN has ordered a test to measure B's strep titers.

Shortly after we finished the course of antibiotics, B's shoulder tic reemerged.  We've noticed he is reacting to some new foods.  Unfortunately, I haven't been able to pinpoint the culprits.  But his ears will turn red, his tics will increase, his tantrums will flair, he'll get a few red splotches on his face.  But this is on a small scale compared to what was going on when he was sick. 

This really showed us that we need to heal his gut, not just avoid foods.  He can't stand to lose any more foods, so we researched some options.  We have decided to follow the GAPS (Gut And Psychology Syndrome) diet.  I will blog more about GAPS hopefully tomorrow.  We will begin when we return from Autism One.

Speaking of Autism One.  I would like to give an overview of the sessions I see on my blog.  I may have Erik be a guest author because he is the one with the scientific brain.  Coming soon in May (I hope!).

Oops...forgot to add.  B has grown and inch and a half and gained two pounds! Yay!  He is growing!

I Will Protect Him

Before my break, I was feeling down, defeated, and really just plain scared.  I was feeding myself too much information.  I really needed to take a step back and focus on what was important.  I took a break from vaccines, autism, politics, the news, etc...  I can't even begin to tell you how much lighter I feel.  Today, my little brother gave me this quote from AW Tozer: "Nothing should so occupy the mind of the Christian than discovering God each day."  I'm going to tape that to my mirror as a reminder.  Admittedly, I did not seek Christ diligently every day.  God is still working on me.  I took me weeks to realize that a relationship isn't me trying to sneak in a quick quiet time that consists of me reading the word and talking then shutting my Bible.  A relationship with God requires me to listen, to pause, to ask questions.  Isn't that how relationships work?  This does not come easy to me.  I'm still growing.

The first day of my break, Erik was wonderful and watched the kids so I could have a few hours to myself.  I went to a coffee shop, ordered a hot chocolate, and settled down with my Beth Moore Bible study on King David.  (I highly recommend it!)  I was reading, studying, and in the back of my mind thinking of B.  Thinking of the vaccine issue.  Worrying about what ifs.  What if they (vaccines) are mandated.  What if choice is removed.  What would happen to B if this were to happen.  I continued my study when suddenly I felt God speak to me...not heard Him, but felt him. ( It was very similar to this moment: Adjusting )  "I will protect him."  At that moment, I am a sobbing mess in the coffee shop.  Relief, joy, a years worth of worry just melting away.  Now, I don't think that means protecting B from everything life throws his way...but just the issues I was worried about.  I will hold onto those words forever.  I wrote them down as soon as I felt them.

I'm baaaaack

I have so much to write I don't know how I'm going to fit it into one post...maybe I won't.

First, I have to say the time away from facebook/forums/blogging was much needed and cleared my head.  I realize I was beginning to sound a little cuckoo.  I was tempted to hide some posts, but then this blog wouldn't be sincere, so the ugly stays.  I do have a confession.  I went on the internet to research a new nutrition plan for B, to show B what an eardrum looks like, and to look up a few recipes....oh, and I googled toxic encephalopathy.  It was written on B's medical chart and I wanted to know what it was.  Silly me, google didn't take into account that biomedical treatment can fix  things like toxic encephalopathy.  I'm not going to worry.

I feel refreshed.  Renewed in spirit.  So thankful for my heavenly Father and the sweet family he has blessed me with.  Amen and Amen! :)

Now, since my brain works in boxes, I'll start the update in a new post.